If you are not one of those folks effected by Hurricane Irene, be grateful. If you were effected I hope that your power is back on and the damage isn't severe.
I wanted to give everyone a shout out to let you know that I am no longer at Regency but have been put back in the hospital at Audubon. The room number is 4115 (i think). It's in the Oncology Unit so if you enquire at the nurse's station. I was admitted for the treatment of a urinary tract infection and to get my pain management meds back in order. Tuesday, however, Dr. Choudrey discovered a new Tumor (#4) behind my left ear and trailing down into my neck. It appears to be completely benign. Nevertheless, he immediately rearranged my chemotherapy schedule. I'm now getting chemo every 12 hours. That plus IV antibiotics plus physical therapy and occupational therapy are keeping me pretty busy. I'm in OT/PT for the damage done by tumors #2 and #3. My left hand is still mostly a functionless claw and I'm paralyzed from the waist down. There has actually been some improvement with my hand (I'm just impatient and being a drama queen) but my legs do not work and I'm incontinent. There is still lots of time and the expectation that I'll improve a great deal. It would be miraculous, however, for me to make a full recovery.
I'll probably be at Audubon through the long weekend. No promises, however, since my insurance, UHC, is inclined to demand that I return to outpatient or nursing home care as soon as possible whether my doctors and I think it's a good idea or not. Just so you'll know (and i can vent) UHC has been a thorn in my side since January 1. I am very disappointed with their services and hope to have the opportunity to switch to anything else when UofL has open enrollment this year. It's UHC's fault that I was placed at Regency (a dreadful experience which I hope to never repeat) and their inability to provide an insurance card or basic information at the first of the year wrought disaster for everyone that was trying to bill me before and after December 31. If you haven't noticed, I dislike them a lot.
UHC, however, is not worth the aggravation of listing all its faults. I wanted to get this note out before rumors started flying since information often shows up on Facebook in bits and pieces and from various sources. I can complain about UHC any time.
The other rumor out there is that I am moving. That's true. My lease is about to expire and my current apartment can not be made barrier free or upgraded to handicapped accessible. Finding a new place will be a long process. I hope to consult the Center for Accessible Living and some other local experts before making any decisions. At the moment, all my worldly goods are being boxed up by benevolent pixies, fairies, gnomes and some normal people (don't ask how they slipped in). If you've heard anything else let me know before it grows legs. I'll be happy to share bylines with you.
Keep all those prayers, positive energy, well wishes and healing magics coming my way if you have it to spare or to give. I appreciate it in a big way. It means a lot to me. I remain hopeful and resolute (but still a bit wacky)